I was so fatigued over the past weekend. Was I getting sick?
It felt like I was fighting off an end of summer cold. Hot days, A/C in
buildings, and cooler nights; they tend to give me a cold. Or is the usual,
crappy feeling that everyone with MS knows and fights on a daily basis? Or is
it six of one, half a dozen of the other? I have included a link on MS and
fatigue help, but I haven't found the magic cure yet. I was on Amantadine. It
helped, but I am apparently allergic to it. My legs looked like you could see
every vein. Very scary. Not to mention, not very aesthetically pleasing. I know
it's vain, but it was also the fact that people with MS tend to run hotter; and
not being able to wear shorts last summer sucked a lot. Now I am on Nuvigil.
It's not covered by my insurance though. It's only about $350 a month. Yeah,
don't I wish! Add to that- I've been suffering from lips that are cracking in
the corners for about the past two months. I was doing some research online and
saw that it could be a side effect of the Nuvigil. That sucks, because that
stuff is like adding a double shot to your mocha Frappuccino! I like it, it
works for me (other than the possibility it’s causing the cracked lips). So,
next week, I will see my Neurologist and after that, my PCP, to find out what I
can do. I do my best to keep up with my exercise, especially yoga since I feel
like it centers me. God knows, people with MS need balance. I take a B12
vitamin in addition to my Women's One-a-Day. But I would love opinions on how
others keep their energy up. I've read Montel Williams' books and he has a diet
plan that seems great (shakes and stuff), but it doesn't seem extremely
affordable or easy. I did read on about.com that someone recommended taking a
10 to 15 minute nap as needed throughout the day. I know that does help me. For
someone who suffers such extreme insomnia at night, I have no problem dropping
off for a 15 minute nap at any time during the day. And strangely enough, I do
feel re-charged for a few hours. Now, how do I convince the rest of the world
that that is acceptable behavior?
I also had a couple of days where I woke up with what I call
the "MS twitch". It's waking up and doing that sleep jerk thing, like
you do when you're nodding off, but a little bit more. It happens to me a lot
in the mornings, usually when I am really tired. Sometimes it's accompanied by,
not quite blurry vision, but it's almost like I can see an outline of my iris
when I look at the wall or the floor. These symptoms are not too worrying to
me. I have been feeling so much better than I was. The "twitch" and the
fatigue are so much better than the double vision and the vertigo back when I
was diagnosed. I know when I see my Neuro next week, he'll probably want me to
schedule an MRI, but that's something I'm due for anyway.
I'm just very curious if anyone has found any natural cures
for fatigue. Does anyone keep a diary of their symptoms? (I'm really bad, I
don't track mine.) Are you on medication for fatigue, and if so, has it helped
you? I was researching Provigil and Ampyra and I'll have to find out if they're
covered by my insurance.
I was going to blog about dating the other day (or the lack
of it in my life), but I was so tired I just watched movies all day. So, coming
soon will be a blog about how to date with MS. How do you explain your cracked
lips and the bruises from your shots, among other things? Where do you meet people nowadays? Other
than online, that is? Hell, how to date in your 30's when you're a couch potato
who has been told by WAY too many friends that she is "just like Liz
Lemon". Nerds. Next time folks, I will tackle the issue of love: where it's hiding and how to find it. Until then, as always, take care and watch where you're walking. :)
http://tamingmultiplesclerosis.com/ms-spasms-twitching-tremors-article.html
http://www.nationalmssociety.org/about-multiple-sclerosis/what-we-know-about-ms/symptoms/fatigue/index.aspx
http://www.mstrust.org.uk/information/opendoor/articles/0502_08_09.jsp
I hope the links showed up, the first time I added them, they didn't, so I had to do it again.
http://tamingmultiplesclerosis.com/ms-spasms-twitching-tremors-article.html
http://www.nationalmssociety.org/about-multiple-sclerosis/what-we-know-about-ms/symptoms/fatigue/index.aspx
http://www.mstrust.org.uk/information/opendoor/articles/0502_08_09.jsp
I hope the links showed up, the first time I added them, they didn't, so I had to do it again.
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